Welcome to the families section of the website. On these pages, you will find information about the Birt-Hogg-Dubé syndrome and how it can affect families. For more details, use the BHD Syndrome tab to locate Information for Families in the drop down menu. Just follow the relevant link in the subsequent drop down menus to find the topics.

Information about BHD

We have sections describing the symptoms that are associated with the Birt-Hogg-Dubé syndrome, current methods for diagnosis and treatment, and some tools that may help you, such as an explanatory letter you can print and give family members, a business card sized personal BHD medical card to carry with you, and more.

There is a hope for future treatment options for those with BHD	You can join a discussion forum to speak to others whose lives are affected by BHD

We have recently updated and expanded this site and welcome comments at info@bhdsyndrome.org

The Birt-Hogg-Dubé Family Alliance provides support and information for all those affected by BHD. We are very pleased to be partnering with the Myrovlytis Trust; this has enabled us to develop this improved website.