We are learning of BHD patients in different countries around the world. If you know of any others, please email us at info@birthoggdube.org.

Our list of countries currently includes:

Australia
Brazil
Canada
Denmark
France
Italy
Japan
Netherlands
Switzerland
United Kingdom
United States

We would also like to include personal stories of BHD patients around the world.Please email info@birthoggdube.org for more information.

For more information about starting a patient group in your country or region, or information about BHD syndrome that may be useful for your doctor, see the tools page