Theoretically, it should be possible for people with Birt-Hogg-Dubé syndrome to have a kidney transplant. People with another hereditary syndrome, von Hippel-Lindau, have had successful kidney transplants when the cancer in their kidneys became too advanced. We have no records of kidney transplants in BHD families.
There is a very long kidney transplant waiting list in many parts of the world. People with cancer may not get a high priority on the waiting lists. Transplants using organs from compatible family members or friends are easier to arrange.
It is hoped that the early detection of kidney tumours can avoid the need for kidney dialysis. There are a few reports of people with Birt-Hogg-Dubé syndrome who are on dialysis (Bures et al., 2004). If the tumours are discovered early enough, and if the tumour growth can be managed by experts who can help the affected person avoid full nephrectomies, the chances of needing dialysis are greatly reduced.
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