Unfortunately, available treatments only remove the lesions temporarily; there does not appear to be a treatment that works permanently. If you only have a few skin lesions, you may be able to have them removed successfully and repeatedly without noticeable scarring. If you have a larger number of lesions, this may be more difficult. You may want to start by treating a small area to see what results you get.
The skin lesions associated with BHD syndrome are considered benign. Removing them is a cosmetic procedure and therefore in the USA will not, in most cases, be covered by insurance.
Your dermatologist may suggest one of several treatments that are currently used in conventional dermatology. None has been designed specifically for the treatment of fibrofolliculomas. Brief details about each technique can be found on the following pages, but you should also ask your doctor for more information when considering treatment.
These are techniques that are used to remove skin lesions in the general population. When you consult with a dermatologist to see if any of them would be appropriate for you, make sure that you discuss the specifics of your situation.
If your dermatologist has read an article about successful removal of Birt-Hogg-Dubé skin lesions, ask how long the results lasted and if this was reported in the article. If the article does not specify how the patient looked after a year or two (preferably after five years) you cannot know how permanent the ‘successful’ treatment was.
- Cautery and cold cautery
- Hyfrecation – electrosurgery
- Curettage and Hyfrecation
Have you had any of these treatments and can you offer any advice on them, or would you like to know more? Why not post your advice or questions on our Forum?