One of the consequences of BHD syndrome is a predisposition to kidney cysts, tumours and kidney cancer (also known as renal cell carcinoma/RCC). The probability that someone diagnosed with BHD syndrome will develop kidney cancer is currently not well-researched. However, nowhere is the percentage greater than 30%, and it may be significantly less. It is challenging to arrive at a more precise calculation as the number of BHD patients researched is small.
The symptoms, classifications, types, and mortality associated with kidney cancer are also discussed in this section. As well as other types of kidney cancer which are not related to BHD syndrome. While you can make changes to your diet and lifestyle to maintain the general health of your kidneys, there is no known drug or known treatment which can completely prevent kidney tumour formation or kidney cancer. Please see the Kidney Treatment page for more details regarding the types of treatment currently available.
