Author Archives: karenharper

What are the odds?

I have a question, are the odds for getting BHDS always 50% if a parent has it? Of the 14 people in my family that have been tested so far, 14 out of 14 have tested positive for BHDS. This … Continue reading

Posted in Living with BHD Syndrome | 3 Comments

Introducing myself

Hi my name is Karen. I am 48 years old and live in New Zealand. I had several collapsed lungs three years ago, and because other family members had also had collapses I participated in a research study in America … Continue reading

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