Hi
I have been diagnosed with BHD. I had a phone call from my cousin in WA asking if I have the lumps on my face, I explained that I did and thus the journey began. My fathers family are mainly in WA and I learned that a lot have been diagnosed. I live in country Victoria and travelling to Melbourne. I had a trial run of laser surgery on my face to remove three of the lumps, which was a success…. but such a difficult recovery. Has anyone else gone through this?
I am about to see an Urologist at the Royal Melb Hosp in Feb, and just love all the other test (all necessary of course).
Cheers
Joy
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Hi Joy,
I have not been officially diagnosed with BHD yet, but I am almost positive that I have the syndrome. My dad was diagnosed 2 years ago and I have the same facial bumps. I am looking into getting them treated with a laser but wanted to get some more information about your experience and if you have any recommendations. Also, what were the steps you took once you decided that you had BHD and did you get treated at NIH?
Thanks so much for the guidance,
Kaitlyn