Birt Hogg Dube Syndrome
     
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Introduction

We want our users to always be aware of any information we collect, how we use it, and under what circumstances, if any we disclose it

Website administration

  Business name : Myrovlytis Trust
  Address  :

First floor, 26 Cadogan Square
London SW1X 0JP

  City : London
  Website URL : www.bhdsyndrome.org
  Website email : info@bhdsyndrome.org
     

Information collection and use

We respect each site visitors right to personnel privacy to that end, we collect and use information throughout our website only as disclosed in this privacy policy. This statement applies solely to information collected on this website.

In order to use this website, visitors and  / members are not required to complete our registration form.

During registration a user must give certain information, but we never sell or give away this information. It is only gathered to contact the user about services on our site for which she/he has expressed interest. Giving additional information helps provide a more personalized experience on our site, but is not required.

We publish a newsletter, and we never sell or share our subscribers email addresses.

Notification of changes

If we decide to change our privacy policy, we will post those changes to this privacy statement

Conflict resolution

We are committed to resolving disputes with in 24-48 hours
If problems arise, users may contact us by

Email: info@bhdsyndrome.org

Contact Information

If site users have any questions or suggestions regarding our privacy policy please contact us at

Email: info@bhdsyndrome.org

Postal address:  Myrovlytis Trust
                           First floor, 26 Cadogan Square
                           London SW1X 0JP

Website URL: www.bhdsyndrome.org

 
     
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Neither the Myrovlytis Trust, nor this website, provides medical advice, diagnosis or treatment. Click here for more information