Clinical trials are specifically designed research programs that answer specific questions regarding the effectiveness and safety of new drugs, combinations of drugs, treatments, surgical techniques, or medical devices.

As a researcher you may want to keep an eye on new clinical trials to maintain a broader field of knowledge in this area. These trials provide an excellent insight into translation from bench to bedside as well as the clinical aspect of scientific research.

For more information click on the links below and use the search term ‘Birt Hogg Dube’ in the first instance:

• Registry of federally and privately supported clinical trials conducted in the United States and around the world: www.clinicaltrials.gov

• Current Controlled Trials allows users to search, register and share information about randomised controlled trials : www.controlled-trials.com

There are currently three clinical trials applicable to individuals with BHD Syndrome:

Genetic Study of Patients and Families With Birt-Hogg-Dube Syndrome

Topical Rapamycin for Fibrofolliculomas (funded by the Myrovlytis Trust)

Genetic Study of Patients With Inherited Urologic Malignancies