Birt-Hogg-Dubé Syndrome » Gene Test & Genetic Counseling http://www.bhdsyndrome.org 'Research and Support' Thu, 22 Jul 2010 14:44:45 +0000 http://wordpress.org/?v=2.8.4 en hourly 1 Diagnosis and Counselling http://www.bhdsyndrome.org/forum/gene-test-genetic-counseling/diagnosis-and-counselling/ http://www.bhdsyndrome.org/forum/gene-test-genetic-counseling/diagnosis-and-counselling/#comments Thu, 06 Aug 2009 11:03:44 +0000 Myrovlytis Trust http://www.bhdsyndrome.org/?p=801 The diagnosis of a genetic disease such as Birt-Hogg-Dubé Syndrome can be a difficult time. From the initial doctors visit, to confirmed diagnosis and beyond. Depending on where you live the level of health care from various members of the medical community may differ considerably.

The ‘Families’ section of this website contains helpful information on diagnosis and treatment, the gene test and genetic counselling. However, because of the differences in healthcare it might be useful to post your experiences of this time. Others may be able to offer you advice, or your story may prove useful for the newly diagnosed individuals.

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