Forum topic: News

The Fourth BHD Symposium agenda and Patient and family sessions schedule are now available. For more information, visit the Fourth BHD Symposium page. We look forward to seeing many of you in Cincinnati on the 28th March!

Today is World Kidney Day! Many events are taking place around the globe, from symposia to walks, marches and cycling. Go to World Kidney Day to learn more.

We are pleased to announce that the Myrovlytis Trust has been awarded Information Standard certification, to recognise that it is a provider of high quality, safe and reliable health information. The Myrovlytis Trust and the BHD Foundation are now able … Continue reading →

Verhaert 2011, a case report, has been added to the BHD Literature Database. A 33-year-old man experienced bilateral spontaneous pneumothorax after presenting with dyspnoea and chest pain. He was found to have a family history of pneumothorax. While lung cysts … Continue reading →

The BHD Literature Database has been updated with a case report by Renfree and Lawless. The authors described a female diagnosed with BHD who presented with multiple neurilemmomas in one hand. The authors suggested hand surgeons consider a diagnosis of … Continue reading →

The abstract deadline is end of the day Wednesday 15 February. Further information on submission is available here. Do submit soon! We look forward to receiving your abstracts.

The BHD Literature Database has been updated with the article by Barrisford et al. The authors reviewed the genetics, molecular pathways, and surgical management of four subtypes of familial renal cancer: von Hippel-Lindau disease, hereditary papillary renal carcinoma, hereditary leiomyomatosis renal … Continue reading →

PREDIR is a French network of centres of expertise established for patients with rare kidney cancer syndromes as well as those requiring specialised care. It is composed of 25 regional centres of expertise. The national centre is based in Paris. … Continue reading →

More information is now available on the Patient and Family sessions at the Fourth BHD Symposium. The sessions will take place on the 29th March, but patients and families are very welcome to stay for all the scientific sessions as … Continue reading →

Registration is now open for the Fourth BHD Symposium, to be held in Cincinnati on 28th-30th March 2012. Click here to register. More details on the symposium, including registration, accommodation and travel can be found on the Fourth BHD Symposium … Continue reading →