9 in 10 people with BHD develop skin lesions, and of these, fibrofolliculomas are the most common type. They are benign tumours of the hair follicle and appear as pale skin bumps on the face, neck, ears and upper body.
People with BHD can have anywhere from a few to hundreds of these skin lesions. They usually start to appear in a person’s 20s and 30s and can get worse over time.
Fibrofolliculomas are often raised, or dome shaped and can vary in size. They may look like pimples, but do not go away with time, and you should not be able to “pop” them like a whitehead pimple.
Trichodiscomas are lesions similar to fibrofolliculomas, but are the same colour as the surrounding skin, instead of being paler.
Some clinicians think that fibrofolliculomas and trichodiscomas are simply different versions of the same type of skin lesion.
Although many people get treatment for their fibrofolliculomas, there isn’t a permanent treatment yet. For treatment options currently available, see the treatment section for more details.