Behind the scenes we have been updating www.bhdsyndrome.org so that it continues to be the primary online resource for anyone interested in BHD syndrome.
The new website will be released in the next few weeks, and will have a similar format to the current site, whilst including some new features. For example, there will be video interviews with BHD researchers and an interactive map of the BHD community – where you will be able to put yourself on the map and locate other BHD families and clinicians around the world.
Since there have been many new developments in the area of BHD research, part of the recent overhaul includes updating the scientific content. The what is BHD? pages of the researchers section will provide the latest information regarding research in the field. The BHD literature database and article library will continue to be regularly updated as work is published, and we will continue to discuss new developments within the blog.
Additionally, we have streamlined the forum for patients, family members and researchers – here you can connect with the international BHD community. Feel free to ask any questions, post your thoughts, share advice, or just browse.
We hope you will find the new website informative and easy to use. If you have any comments on any of the content we’ve provided feel free to post a message in the forum. Comments and suggestions can also be sent to firstname.lastname@example.org. We hope that the website will continue to encourage an interactive BHD community, so check back soon and be sure to let us know what you think!