New BHD clinical trial on ClinicalTrials.gov

An observational study  – Assessment of Safery of Air Travel in Patients with BHD Syndrome – aims to assess the safety of air travel in patients with BHD syndrome via a questionnaire. Secondary aims of this study include further characterisation of the clinical aspects of disease and to establish a contact registry for these patients, in order to facilitate future studies.

Further details about the study, including access to the study questionnaire, are provided in the link below:

https://redcap.research.cchmc.org/surveys/?s=oNTxfZ9gqz

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