Newsletter and Focus Group Announcement

Newsletter

The BHD February 2021 newsletter is now available. In this issue you will find out the latest BHD news, vote on a BHD expert you would like to meet and get the BHD Facebook frame.

Read the newsletter now!

If you would like to receive future newsletters please email contact@bhdsyndrome.org with the subject line “Subscribe to Newsletter”.

Focus Group

We are also looking to establish a small focus group of patients to bounce ideas around moving forward. Ideally we would have a geographic spread of people. We promise this isn’t too involved – a few emails and perhaps a zoom/teams call every now and then.

If you are interested please send an email to contact@bhdsyndrome.org with the subject line “Focus group”.

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