We Are Back!

We are so happy to be restarting our efforts at the BHD Foundation, and are here to fund research, support patients and raise awareness of BHD.  We have several exciting plans for 2021 including a virtual BHD symposium and a regular newsletter providing information on the latest BHD research and interviews from patients, researchers and doctors.

We want to provide a platform for patients, families and friends, where your voices can be heard.  

If you would like to receive our newsletters by email or would like to take part in the interview feature, please email contact@bhdsyndrome.org.

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